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1st PROSTATE CANCER ADVOCACY TRAINING COURSE 1-3 June 2012 in Jongny s/Vevey - Switzerland Patient advocacy is a vital aspect in undertaking optimal delivery of healthcare to patients. Even if being a patient enables to experience intimately the illness and the upset induced by diagnosis and treatments, not everyone starts out by being a good patients ‘advocate.
Therefore the European Prostate Coalition has launched the 1st Prostate
Cancer Advocacy Training Course in order to provide to all patients’
advocate the basic knowledge about the access to the best evidence based
information about prostate cancer as well as communication and social
networking skills.
For more information please contact
YourTreatmentChoices.com is a new clinical trials service for patients where they can search for, watch and ask about clinical trials taking place locally or nationally. The service enables patients who want suitable clinical trial options to directly contact clinical researchers responsible for them via a private messaging system. Managed and operated by Tomorrows Medicines, a healthcare education company based in UK, the service is free for patients and independent of any pharmaceutical company or contract research organisation that runs trials on behalf of trial sponsors.
Since the site was made available, thousands of patients from 25 different countries have searched for clinical trials for more than 250 conditions and are making contact with clinical teams. Globally, the site provides access to more than 40,000 actively recruiting trials in more than 190 countries. In a survey of 80 cancer patients, 83% said they would use the site to find and learn about local and regional clinical trials. 80% would use the private messaging system to make contact with the clinical trial team and 77% say they are likely to consider participating in a clinical trial using the services provided by YourTreatmentChoices.com. Investigators can also use the service by adding screening questions and educational material including video to their trial information page. Ultimately though the benefit of YourTreatmentChoices.com is that it gives more power to patients themselves. For more information please contact Dr Clare Nolan T: +44 (0)1925 607125 E: dr.cj.nolan@tomorrowsmedicines.com
Sign the Proactive Prostates Initiative Call to Action We call upon governments, public health institutions, health care workers, and members of civil society to join this Call to Action. Together we must work towards ensuring that all men have access to the best possible information and treatment. |
PatientsLikeMe® (www.patientslikeme.com) is the world's leading online health data sharing platform. PatientsLikeMe® creates new knowledge by charting the real-world course of disease through the shared experiences of patients.
While patients interact to help improve their outcomes, the data they provide helps researchers learn how these diseases act in the real world and accelerate the discovery of new, more effective treatments.
Europa Uomo
September 19, 2012 - Brussels
Objectives
1 - To improve our visibility towards the EU
2 - To improve our visibility towards the local population
3 - To offer information on prostate diseases to a number of political
leaders of the EU and persons associated to the commission (ambassadors
parliamentarians) and to the personnel working for the commission in
Brussels.
4 - To make our case heard
5 - To show that patients and the health professionals (EAU) can act as one
6 - To attract the interest of the (inter)national press
7 - To promote, eventually have a statement (declaration of support) on
prostate cancer signed by as many parties as possible.
The European activity (EC market place and buildings)
1 - A press conference for the European and Belgian press on the situation
of prostate cancer and prostate diseases in Europe. For this conference we
will work in collaboration with our scientific partners, EAU, ESO and others
if needed.
2 - A meeting with a delegation of the political world of the EC, the
commission, the parliament and if possible representatives from other
countries through their embassy … This meeting will be on the situation of
prostate cancer and prostate diseases and on our central theme for EPAD
2012. We will organise this meeting again in concert with our scientific and
other partners and allies (EAU, ESO, ECPC and others)
3 - A “big” public awareness event in the evening offered to the people
working for the commission (more than 10.000 persons work for the commission
in Brussels). This scientific event will be on prostate cancer and prostate
diseases and on Europa Uomo and the Belgian branche. For the scientific
program we will cooperate with EAU and the Belgian urologists. On Europa
Uomo we would like to see the creation of a EC US TOO branch in Brussels
under the Belgian structures.
For more information please contact
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| Disclaimer - |
Europa-Uomo.org is intended to be for information use only and not designed to provide medical advice or professional services. The information provided throughout this website is not a substitute for medical care and should not be used for diagnosing or treating prostate cancer. If you have, or suspect you may have, a health problem you should consult a doctor. |